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On this page I'll include a list of links to other web sites that have been helpful to us so far .
This website
is VERY informative to learning about children with TEF and VATER/VACTERL association :
www.tefvater.org
Another link where you can meet other families all over the world that have children with VATER/VACTERL association :
www.vaterconnection.org
This site is very helpful for families who have had children that have had the pull-through surgery , colostomies, and
so on :
www.pullthrough.org
Even though this is a support group for those living in the U.K.
It has a great amount of information that is very helpful to families with children that have VATER/VACTERL Association
:
VACTERL Network - this website is new . But the group isnot new . The VACTERL Network was created by 3 moms whos children
have VATER/VACTERL and was put together to help families get in touch with other familes , for those to find information and
support .
www.vacterlnetwork.org
Congenital Scoliosis Support Group - this is a yahoo group that supports families that have children with congenital
, idiopathic scoliosis.
http://groups.yahoo.com/group/congenitalscoliosissupport/
Parent 2 Parent- this group is a wonderful forum for familes with children with all types of special needs . Here you
can talk about everything from what is going on in the world today to feeding problems , tube feeding , adaptive equipment
and more . This is open to all families .
www.parent-2-parent.org
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